The Williams Heart Family

On the 4th july our daughter Katie passed away after being in hospital for 2 months waiting for a second heart transplant,Katie had rejection and suffered many heart attacks,she was placed on the echmo machine to keep her alive then placed on a double berlin heart but her body couldn’t cope with this and doctors said they couldn’t transplant Katie because she was so sick,we had the watch her machine being switched off and she died in our arms 4 days before her 5th birthday,we are devastated and her twin sister is clearly missing her.

Being in hospital and watching Katie go through all the operations was the worst time in our lives and at points we could do nothing but to hold her hand,sometimes we was to frightened to touch her its the worst thing in the world,everyday was different one minute being told to go and rest and on the other hand being told we was off the ward to much,we was very much judged by staff who was telling us one thing and then telling us another,we never knew what to do for the best and i think staff on picu need to understand what the parents have to go through too,some days i was ok and the next very depressed and not knowing what to do,being told we should leave at 7.30 every night so Katie could rest and seeing other parents there with there children anytime they wanted,we have gone through a lot as a family and I’m going to write a letter to the head of the hospital telling them how we felt and what we was and wasn’t told to do,of course i thank the doctors and nurses for keeping our Katie alive for 2 months,but they put parents under so much pressure even trying to get involved in mine and Simon’s relationship which put more pressure on us and saying things about my weight which clearly has nothing to do with them.

I got sick quite a few time whilst Katie was on picu and i was told to go and see a doctor then when i did they said i focused to much on my own illness and not Katie’s so i couldn’t win either way really,i hope when i get in touch with picu they change a few things as regards to treating parents because its not nice,life is hard without Katie here and will never be the same again,we loved our daughter to bits and she was a strong willed little girl with passion for raising awareness for organ donation so we will carry on this fight for her in her memory,i hope staff on picu read this i have nothing to hide,its been a few months since Katie went to heaven and I’m ready to state my opinions to them now,I’m not saying they didn’t look after our daughter because they did but they have to understand they see things like this all the time and parents don’t and if it was there child they would feel the same way,this is the first time i have spoke out like this and wont be the last time because of the way we was treated as parents and people.

R.I.P KATIE MUMMY AND DADDY LOVE YOU WE ALWAYS HAVE AND ALWAYS WILL SEE YOU IN HEAVEN……………………XXXXXXXXXX

This entry was posted on Sunday, 12 September 2010 at 4:23 pm and is filed under Miscellaneous. You can follow any responses to this entry through the RSS 2.0 feed. You can leave a response, or trackback from your own site.