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06 September 2010
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Hope the site serves you well Louise. Good luck with all your efforts.
Good Start!! All the very best !!
My darling louise (well done) you have worked so hard
for this and your doing a great job.
Its in your nature to want to help people and that makes you
a kind and brilliant person.
I LOVE YOU SO MUCH SIMON X
What a fantastic site. It’s so good to see all of this coming together.
You’re doing something truly special for Katie and Lauren – and for everyone else living with the same condition.
You guys should be justly proud. Your daughters certainly will be.
Rob Smith
ITV Granada
I have been on here for ages now (I meant to just have a quick look to see how you were getting on!) reading all sorts of bits and pieces, it’s a great insight.
I just wanted to say well done for putting this together and writing so often, it must be very difficult at times.
Thank you very much also for the link to our site.
Nina (Rainbow Trust Children’s Charity)
I just want to say hello & I hope everything is going well for your family. Expecially the twins. Best wishes.
Thankyou michelle for the comment you left,we hope you like the website and stay in touch.
The twins send hugs and kisses
Louise and Simon x
What a great site I wish you and your family well. I am writing for the NHS blog it will be nice to share experiances.
Wow what a fantastic site – wish it was around when I started my journey living with DCM – it would have give me such hope.
Your girls are a credit to you Louise and Simon.
Sheran x
Sheran told me about this blog it’s wonderful to read your story, you’ve made a great site. My daughter Eloise had a heart transplant at the Freeman on the 10th June 2002 aged 21mths , 6 yrs on she’s doing fantastically well we now go to GOSH as it’s much nearer. Eloise had viral cardiomyopathy.
Take care of yourselves and your precious girls.
Becxxxx
hey its ethans mummy, im so glad katie is doing well now!! couldnt beleive it when paul you were related!! what a small small world!
cant beleive the PTransport let you down like that, dont these people realise that we already have so much stress in our lives we dont need anymore!
Anyway I hope your ALL well, keep in touch lots of love and scrummy kisses to the girls Sam Ethan Dean n Josh x x x x x
Thank you so much for all your comments to our family i am over whelmed with it all really,we have had a outstanding amount of people on here today thankyou to you all
best wishes
Louise and family x
Hi all,
I am Maria Chebrika and i am mum to Connor Shaw who is 5 years post transplant next week !! at the Freeman, Time has gone so quick !!
Just wanted to say what a lovely site this is and so inspirational for people to read your story.
Glad all is ok with Katie & Lauren,
Take care,Maria x
Thank you maria for your kind message
i hope that connor is doing ok and please
keep in touch love louise and family x
Hi Williams Family……………
Hope this message reaches you and you are all well!
Louise – I did email you a few weeks ago but looking at your daily diary you have been not only busy but a little stressed!…
I will email again to catch up!
Love to you all and hope to hear from you soon!
Sam
x
Just saw you on Granada Reports tonight and wanted to say how courageous you are as a family and wish you to best of luck and happiness.
Dave
Chorlton, Manchester
Hello, Ive just seen you on the News and i thought id message you. Your children are sooo cute. And Happy Birthday to them. I really hope you all are well very soon!! I liked the comment about the Tantrums. Makes me think about my daughter and realize that shes the most precious thing to me. Take care God bless Tasha (Blackburn) xx
Hello just seen you on the News and your story touched my heart. Katie and Lauren are so cute and belated birthday wishes to them both. Its people like yourselves which make me think how lucky i actually. Take care and god bless hope all goes well in the year ahead (Newton Heath- Manchester) x x x
Thank you all,the twins mean everything to us and they had a fantastic birthday.
We are very lucky to have each other and our twins,there is no price in the world that can create the love we have every day for our daughters.
We will reply to all comments on the guestbook and emails can be sent to louiseandsimon@live.co.uk
Best wishes
THE WILLIAMS HEART FAMILY X
Thanks for sharing your family’s story! Your girls are beautiful!
Joanna
Ontario, Canada
Mom to Ryley, DCM, heart transplant Jan. 29, 2006
hi to you all,zoe chambers mum here,just wanted to say thankyou for your kind words we miss zoe so much .hope your all doing ok love julie
julie and rob
what can we say but we are here for you all and if you ever want to talk or come down and visit just say the word.
It was a total shock zoe fought a good fight she was a tough little girl i for one will never ever forget her.
Did you see the prayers on website gone to soon everyone was leaving prayers for you and your family from all over the world.
we are always here for you and stay in touch julie ok.
love to you all
Louise and Simon and the twins xxxxxxxxxxxxxxxxxx
thanks for sharing your story i have dilated cardiomyopathy too and its always good to read stories like your i wish you all the best and look forward to following your website
j
south west london uk, dilated cardiomyopathy 24 years old.
Thankyou J for your comment on our guestbook,DCM is not a nice condition to have and because we have had so many family members with it and very little support its just our way of trying to help other people with DCM and going through transplants.
I too wish you the best of luck in life and hope you stay in touch with us and of course let us know how your doing,maybe you could register for the forum and tell us your full story then you can do updates like a lot of people do and its a good way to talk to others as well as us with DCM,take a look and see what you think J. the forum is at the top of the front page just click on forum and away you go.
Best wishes
louise and family x
Thankyou louise and simon for the lovely heart,and for thinking about us.You have so much on your hands right now and you still think of us ,hope your all ok you are such a special family wishing you all the luck in the world keep on fighting the good fight love to you all julie chambers
Louise and simon
just want you to know i think you have both done great on setting your own site up for you all and it as brought tears to my eyes as i know what a tough time you all have been through and im so glad and happy for you both now katie as got her new heart and wish you all the very best in life and the future give the girls a big hug and kiss from me please
love tracey xx
tracey,its very sad that the last time we spoke it wasnt good words i know things have happend in the past and we will never be best of friends,it sounds like you have grown up quite alot in the time i have not seen you and we do wish you all the very best in life and the kids.
You speak such kind words for the twins and us and thats why i cannot be angry with you anymore,the past is the past,but it can never be the way it was before you know that.
thanks for your messages and im so chuft for your kay having another baby a girl as well i bet she is over the moon.
you take care of them kids and thanks again.
Best wishes
louise williams and family
i hope all is well im really sorry to hear that about you i hope to talk to u soon
thanx mono i will speak to you later on yoville buddy ok.
love to you louise x
Hi louise
Thanks for replying back to me.Im just glad we can still talk to each other and i was upset how it ended up betwen us all.I always think about the girls and you and simon there is never a day that i don’t. and i just hope that lauren gets better to just like katie has so they both can grow up together and do all the thinks they want to do in life.Yeah iv grown up hell of alot and changed to since i last seen you all and could not be as happy as i am now and same with the kids to they are always spoilt and well looked after now with there new dad john he treats them well.olivia’s next week on the 22nd and she loves school now she and kayden are growing up to quick now and coming on great after he had his operation done on his head.How did you get on at the hospital i hope you get better to as your a great mum to them to little gems in your life.Im even goner join your donner list for you all thats how much i care for you all.
take care and best wish’s to you all
love tracey xxx
im glad you will all go on the donor list even your kids it only takes 2 minutes to do and its not so say something is going to happen to any of you,your more likley to need a donor than become a donor.
thankyou for your kind words im glad your happy now and the kids.
best wishes
louise x
hi,jessika thanks for looking at our website for our daughters
wishing you all the very best
the williams family x
perhaps the person who is talking about baby emma being born could get in touch again and join our forum so they can show us pictures of the baby,thanx
the williams family xx
good guest page.
thank you.
Hi. I can’t believe you manage to this site, as well as deal with all the stresses you have.
My two children were diagnosed with dilated cardiomyopathy last week. It’s inherited from their dad, he died last year at aged 28. They are both well at the moment, but it’s a strain with the constant worry, and bad thoughts.
Take care xx
oh my god claire im so sorry for your sad loss and please get in touch via private email at louiseandsimon@live.co.uk and leave your contact details i hope your children never get to the stage we are at and my dad also died last year of dilated cardiomyopathy so its hard not to worry,i hope you keep in touch and please join our free forum and tell us your story other people use the forum who have heart problems and it would be good for you and them and me to talk take care my love give the kids a hug from us.
best wishes
louise and the williams family xxxx
What a great start to a New Year! compared to last year. Lauren and Katie are as cute as ever. Katie is looking so cute and healthy compared to last year!! In fact all of you are looking well, you deserve a huge medal for what you\’ve all been through!
Love you all lots and lots xxx
Keep strong all of you!!!
Katie and Lauren\’s Auntie Mikki
Michaela xx
Your story has truly touched my heart. I live in East Texas, US. I have 3 daughters (4 yr old twins and an 18 mo. old) and I couldn’t imagine being as strong as you are. Your girls are beautiful, and I will pray for your entire families health & well being. May god bless you & your family. Will love from the United States, The Read Family
Thank you so much that means the world to us
Love louise xx
I would so very much love to offer my home for a place to stay while you are in the US. I know how it is to not have enough money to go around as I am the mom of 9 and grandma of 9. I still have children at home but you would be more than welcome to stay here for as long as you want. There isn’t tons of sightseeing in our town but it would be a place to “hang your hats” if you wanted. (I live in the midwestern part of Minnesota)
Saw you guys over on the Fox News website and thought I’d drop you a line. Our son Connor has two kinds of cardiomyopathy– left ventricular noncompaction and hypertropic. Thankfully thus far he’s doing very well and hasn’t needed anything done. We’ll keep all of you in our thoughts and prayers– hope everything goes well for you! Tell the girls they’ve got a few fans over here in the Seattle area.
~Jess
I just wanted to let you guys know that you are in my prayers. I was diagnosed with cardiomyopathy when I was 21. I’m 25 now. It’s a scary thing to deal with and I can’t imagine doing it three times over.
At my last doctors visit in early 2008 I was found to have NO symptoms and my heart is functioning normally- now I am happily married and healthily 8 months pregnant. I hope that this can be an inspiration to you in some small way. I know that miracles can and do happen and I pray that they will in your lives.
I believe in the power of prayer, the miraculous healing of our Lord Jesus Christ and I will lift you and your precious daughters up to Him! Your story is on FoxNews.com today here in the United States, and it led me to your site. I will keep you all in my prayers! Look to God for strength, He will see you through these times.
Signed Julie in Florida
hello williams family, my husband and i have twin girls too and unfortunatley my husbands family are affected by cardiomyopathy, cliff lost his sister and his brother has had a transplant, our girls are currently well and we pray they will stay that way thier dad too, i understand what you mean when you say yo live in limboland, we hope you all have the strength too get through this and we wish you all the very very best for a happy future together.
Thank~you so much to all the people from america you are all so kind and your prayers will be felt here in the uk,Colleen please could you send us your email address through contact us and we can chat then and if anyone else wants to keep in touch then just send over your email address and we will keep in touch.
Thankyou so much from the bottom of our hearts
the williams family uk xxxx
I will keep you and your daughters’ in my prayers. With God all things are possible. Love and Peace to all.
hello,
well today is my first day ever on this website. God only knows how I ended up on here. I’m here at work and just decided to search the web. This is just a feeling i can’t describe finding you guys. My dad had a transplant, a live on actually. My mother gave him 65% of her liver. It is something that really does effect a family but in the end gets you closer to your family than you would ever believe. my dad was diagnost in 99 and finally got it 2 years ago and everyday is just another joyful day to see him wake up and have him around one more day. Yes the key is live on day at a time! Well I really didn’t know what to write I just felt like I had to. Your page, your journal entries just made me feel so inspired and warm inside. I know i will be back on this page forever now. I feel like drawn to your website. In someway or another. Just remember every bit counts. May God Bless your family and you have two beautiful little angels.
Vanessa Roman
I read your story and cried… I wish you and your beautiful little girls the very best.
Lots of love and prayers,
Jennifer Dunford
hi
i came across this site through a news article in telegraph. I know it is quite tough but i am sure thing would go on fine. You have got a wonderful husband who is loving and caring and you are a strong person yourself. Life is full of surprises and testing time…….all one should do is keep going on with a faith that things would be fine soon………and they would be.
Lots of love and good wishes for you all……….babies are so beautiful just like angels.
Love and Regards,
Pinky (India)
Hi Katie and Lauren,
May God bless you with Lots and Lots of love and Happines in Life. No matter what keep going in life……..God has Bless you with such wonderful and Strong parents…….Grow up to become like them.
Lots of love
Pinky