My darling louise (well done) you have worked so hard
for this and your doing a great job.
Its in your nature to want to help people and that makes you
a kind and brilliant person.
I LOVE YOU SO MUCH SIMON X
I have been on here for ages now (I meant to just have a quick look to see how you were getting on!) reading all sorts of bits and pieces, it’s a great insight.
I just wanted to say well done for putting this together and writing so often, it must be very difficult at times.
Thank you very much also for the link to our site.
Sheran told me about this blog it’s wonderful to read your story, you’ve made a great site. My daughter Eloise had a heart transplant at the Freeman on the 10th June 2002 aged 21mths , 6 yrs on she’s doing fantastically well we now go to GOSH as it’s much nearer. Eloise had viral cardiomyopathy.
Take care of yourselves and your precious girls.
Becxxxx
Thank you so much for all your comments to our family i am over whelmed with it all really,we have had a outstanding amount of people on here today thankyou to you all
Hi all,
I am Maria Chebrika and i am mum to Connor Shaw who is 5 years post transplant next week !! at the Freeman, Time has gone so quick !!
Just wanted to say what a lovely site this is and so inspirational for people to read your story.
Glad all is ok with Katie & Lauren,
Take care,Maria x
Hi Williams Family……………
Hope this message reaches you and you are all well!
Louise - I did email you a few weeks ago but looking at your daily diary you have been not only busy but a little stressed!…
I will email again to catch up!
Hello, Ive just seen you on the News and i thought id message you. Your children are sooo cute. And Happy Birthday to them. I really hope you all are well very soon!! I liked the comment about the Tantrums. Makes me think about my daughter and realize that shes the most precious thing to me. Take care God bless Tasha (Blackburn) xx
Hello just seen you on the News and your story touched my heart. Katie and Lauren are so cute and belated birthday wishes to them both. Its people like yourselves which make me think how lucky i actually. Take care and god bless hope all goes well in the year ahead (Newton Heath- Manchester) x x x
Thank you all,the twins mean everything to us and they had a fantastic birthday.
We are very lucky to have each other and our twins,there is no price in the world that can create the love we have every day for our daughters.
We will reply to all comments on the guestbook and emails can be sent to louiseandsimon@live.co.uk
what can we say but we are here for you all and if you ever want to talk or come down and visit just say the word.
It was a total shock zoe fought a good fight she was a tough little girl i for one will never ever forget her.
Did you see the prayers on website gone to soon everyone was leaving prayers for you and your family from all over the world.
we are always here for you and stay in touch julie ok.
love to you all
Louise and Simon and the twins xxxxxxxxxxxxxxxxxx
thanks for sharing your story i have dilated cardiomyopathy too and its always good to read stories like your i wish you all the best and look forward to following your website
j
south west london uk, dilated cardiomyopathy 24 years old.
Thankyou J for your comment on our guestbook,DCM is not a nice condition to have and because we have had so many family members with it and very little support its just our way of trying to help other people with DCM and going through transplants.
I too wish you the best of luck in life and hope you stay in touch with us and of course let us know how your doing,maybe you could register for the forum and tell us your full story then you can do updates like a lot of people do and its a good way to talk to others as well as us with DCM,take a look and see what you think J. the forum is at the top of the front page just click on forum and away you go.
Thankyou louise and simon for the lovely heart,and for thinking about us.You have so much on your hands right now and you still think of us ,hope your all ok you are such a special family wishing you all the luck in the world keep on fighting the good fight love to you all julie chambers
Louise and simon
just want you to know i think you have both done great on setting your own site up for you all and it as brought tears to my eyes as i know what a tough time you all have been through and im so glad and happy for you both now katie as got her new heart and wish you all the very best in life and the future give the girls a big hug and kiss from me please
love tracey xx
tracey,its very sad that the last time we spoke it wasnt good words i know things have happend in the past and we will never be best of friends,it sounds like you have grown up quite alot in the time i have not seen you and we do wish you all the very best in life and the kids.
You speak such kind words for the twins and us and thats why i cannot be angry with you anymore,the past is the past,but it can never be the way it was before you know that.
thanks for your messages and im so chuft for your kay having another baby a girl as well i bet she is over the moon.
you take care of them kids and thanks again.
Thanks for replying back to me.Im just glad we can still talk to each other and i was upset how it ended up betwen us all.I always think about the girls and you and simon there is never a day that i don’t. and i just hope that lauren gets better to just like katie has so they both can grow up together and do all the thinks they want to do in life.Yeah iv grown up hell of alot and changed to since i last seen you all and could not be as happy as i am now and same with the kids to they are always spoilt and well looked after now with there new dad john he treats them well.olivia’s next week on the 22nd and she loves school now she and kayden are growing up to quick now and coming on great after he had his operation done on his head.How did you get on at the hospital i hope you get better to as your a great mum to them to little gems in your life.Im even goner join your donner list for you all thats how much i care for you all.
take care and best wish’s to you all
love tracey xxx
im glad you will all go on the donor list even your kids it only takes 2 minutes to do and its not so say something is going to happen to any of you,your more likley to need a donor than become a donor.
thankyou for your kind words im glad your happy now and the kids.
perhaps the person who is talking about baby emma being born could get in touch again and join our forum so they can show us pictures of the baby,thanx
14 April 2008 at 7:19 pm
Hope the site serves you well Louise. Good luck with all your efforts.
17 April 2008 at 11:06 am
Good Start!! All the very best !!
28 April 2008 at 7:14 pm
My darling louise (well done) you have worked so hard
for this and your doing a great job.
Its in your nature to want to help people and that makes you
a kind and brilliant person.
I LOVE YOU SO MUCH SIMON X
5 May 2008 at 3:22 pm
What a fantastic site. It’s so good to see all of this coming together.
You’re doing something truly special for Katie and Lauren - and for everyone else living with the same condition.
You guys should be justly proud. Your daughters certainly will be.
Rob Smith
ITV Granada
8 May 2008 at 6:41 pm
I have been on here for ages now (I meant to just have a quick look to see how you were getting on!) reading all sorts of bits and pieces, it’s a great insight.
I just wanted to say well done for putting this together and writing so often, it must be very difficult at times.
Thank you very much also for the link to our site.
Nina (Rainbow Trust Children’s Charity)
4 June 2008 at 3:27 pm
I just want to say hello & I hope everything is going well for your family. Expecially the twins. Best wishes.
4 June 2008 at 6:51 pm
Thankyou michelle for the comment you left,we hope you like the website and stay in touch.
The twins send hugs and kisses
Louise and Simon x
11 June 2008 at 8:58 pm
What a great site I wish you and your family well. I am writing for the NHS blog it will be nice to share experiances.
12 June 2008 at 10:30 am
Wow what a fantastic site - wish it was around when I started my journey living with DCM - it would have give me such hope.
Your girls are a credit to you Louise and Simon.
Sheran x
12 June 2008 at 12:26 pm
Sheran told me about this blog it’s wonderful to read your story, you’ve made a great site. My daughter Eloise had a heart transplant at the Freeman on the 10th June 2002 aged 21mths , 6 yrs on she’s doing fantastically well we now go to GOSH as it’s much nearer. Eloise had viral cardiomyopathy.
Take care of yourselves and your precious girls.
Becxxxx
12 June 2008 at 3:31 pm
hey its ethans mummy, im so glad katie is doing well now!! couldnt beleive it when paul you were related!! what a small small world!
cant beleive the PTransport let you down like that, dont these people realise that we already have so much stress in our lives we dont need anymore!
Anyway I hope your ALL well, keep in touch lots of love and scrummy kisses to the girls Sam Ethan Dean n Josh x x x x x
12 June 2008 at 7:34 pm
Thank you so much for all your comments to our family i am over whelmed with it all really,we have had a outstanding amount of people on here today thankyou to you all
best wishes
Louise and family x
16 June 2008 at 5:47 pm
Hi all,
I am Maria Chebrika and i am mum to Connor Shaw who is 5 years post transplant next week !! at the Freeman, Time has gone so quick !!
Just wanted to say what a lovely site this is and so inspirational for people to read your story.
Glad all is ok with Katie & Lauren,
Take care,Maria x
18 June 2008 at 12:00 pm
Thank you maria for your kind message
i hope that connor is doing ok and please
keep in touch love louise and family x
18 June 2008 at 4:13 pm
Hi Williams Family……………
Hope this message reaches you and you are all well!
Louise - I did email you a few weeks ago but looking at your daily diary you have been not only busy but a little stressed!…
I will email again to catch up!
Love to you all and hope to hear from you soon!
Sam
x
9 July 2008 at 6:18 pm
Just saw you on Granada Reports tonight and wanted to say how courageous you are as a family and wish you to best of luck and happiness.
Dave
Chorlton, Manchester
9 July 2008 at 6:18 pm
Hello, Ive just seen you on the News and i thought id message you. Your children are sooo cute. And Happy Birthday to them. I really hope you all are well very soon!! I liked the comment about the Tantrums. Makes me think about my daughter and realize that shes the most precious thing to me. Take care God bless Tasha (Blackburn) xx
9 July 2008 at 6:22 pm
Hello just seen you on the News and your story touched my heart. Katie and Lauren are so cute and belated birthday wishes to them both. Its people like yourselves which make me think how lucky i actually. Take care and god bless hope all goes well in the year ahead (Newton Heath- Manchester) x x x
9 July 2008 at 8:43 pm
Thank you all,the twins mean everything to us and they had a fantastic birthday.
We are very lucky to have each other and our twins,there is no price in the world that can create the love we have every day for our daughters.
We will reply to all comments on the guestbook and emails can be sent to louiseandsimon@live.co.uk
Best wishes
THE WILLIAMS HEART FAMILY X
21 July 2008 at 7:04 pm
Thanks for sharing your family’s story! Your girls are beautiful!
Joanna
Ontario, Canada
Mom to Ryley, DCM, heart transplant Jan. 29, 2006
19 August 2008 at 2:44 pm
hi to you all,zoe chambers mum here,just wanted to say thankyou for your kind words we miss zoe so much .hope your all doing ok love julie
22 August 2008 at 12:01 am
julie and rob
what can we say but we are here for you all and if you ever want to talk or come down and visit just say the word.
It was a total shock zoe fought a good fight she was a tough little girl i for one will never ever forget her.
Did you see the prayers on website gone to soon everyone was leaving prayers for you and your family from all over the world.
we are always here for you and stay in touch julie ok.
love to you all
Louise and Simon and the twins xxxxxxxxxxxxxxxxxx
6 September 2008 at 9:21 pm
thanks for sharing your story i have dilated cardiomyopathy too and its always good to read stories like your i wish you all the best and look forward to following your website
j
south west london uk, dilated cardiomyopathy 24 years old.
8 September 2008 at 12:38 am
Thankyou J for your comment on our guestbook,DCM is not a nice condition to have and because we have had so many family members with it and very little support its just our way of trying to help other people with DCM and going through transplants.
I too wish you the best of luck in life and hope you stay in touch with us and of course let us know how your doing,maybe you could register for the forum and tell us your full story then you can do updates like a lot of people do and its a good way to talk to others as well as us with DCM,take a look and see what you think J. the forum is at the top of the front page just click on forum and away you go.
Best wishes
louise and family x
14 September 2008 at 7:43 pm
Thankyou louise and simon for the lovely heart,and for thinking about us.You have so much on your hands right now and you still think of us ,hope your all ok you are such a special family wishing you all the luck in the world keep on fighting the good fight love to you all julie chambers
20 September 2008 at 3:43 pm
Louise and simon
just want you to know i think you have both done great on setting your own site up for you all and it as brought tears to my eyes as i know what a tough time you all have been through and im so glad and happy for you both now katie as got her new heart and wish you all the very best in life and the future give the girls a big hug and kiss from me please
love tracey xx
2 October 2008 at 10:03 pm
tracey,its very sad that the last time we spoke it wasnt good words i know things have happend in the past and we will never be best of friends,it sounds like you have grown up quite alot in the time i have not seen you and we do wish you all the very best in life and the kids.
You speak such kind words for the twins and us and thats why i cannot be angry with you anymore,the past is the past,but it can never be the way it was before you know that.
thanks for your messages and im so chuft for your kay having another baby a girl as well i bet she is over the moon.
you take care of them kids and thanks again.
Best wishes
louise williams and family
6 October 2008 at 1:54 am
i hope all is well im really sorry to hear that about you i hope to talk to u soon
6 October 2008 at 5:13 pm
thanx mono i will speak to you later on yoville buddy ok.
love to you louise x
12 October 2008 at 1:30 am
Hi louise
Thanks for replying back to me.Im just glad we can still talk to each other and i was upset how it ended up betwen us all.I always think about the girls and you and simon there is never a day that i don’t. and i just hope that lauren gets better to just like katie has so they both can grow up together and do all the thinks they want to do in life.Yeah iv grown up hell of alot and changed to since i last seen you all and could not be as happy as i am now and same with the kids to they are always spoilt and well looked after now with there new dad john he treats them well.olivia’s next week on the 22nd and she loves school now she and kayden are growing up to quick now and coming on great after he had his operation done on his head.How did you get on at the hospital i hope you get better to as your a great mum to them to little gems in your life.Im even goner join your donner list for you all thats how much i care for you all.
take care and best wish’s to you all
love tracey xxx
12 October 2008 at 3:10 pm
im glad you will all go on the donor list even your kids it only takes 2 minutes to do and its not so say something is going to happen to any of you,your more likley to need a donor than become a donor.
thankyou for your kind words im glad your happy now and the kids.
best wishes
louise x
15 October 2008 at 6:43 pm
Hello.
The images were released to celebrate the arrival on Monday of Emma Tallulah, the couple’s third daughter.
Bye.
15 October 2008 at 8:35 pm
Hi!
My name is Jessika!
16 October 2008 at 7:49 am
hi,jessika thanks for looking at our website for our daughters
wishing you all the very best
the williams family x
16 October 2008 at 7:51 am
perhaps the person who is talking about baby emma being born could get in touch again and join our forum so they can show us pictures of the baby,thanx
the williams family xx
18 November 2008 at 4:06 pm
good guest page.
thank you.