The Williams Heart Family

Hi,everyone
Well we are all back at home now from newcastle hospital where katie had her small operation and all went well,the doctors had to take a sample from katie’s lung because her oxygen is low and they also said that she has asthma and will need something for that soon before it gets any worse.
Its not been to bad for any of us this time we do find it stressfull and get on each others nerves and sometimes are not very nice to others and each other just because of the stress but this time we took it in our stride,it has all been filmed by the bbc and will be on air easter so watch out for that,We also met some awsome family’s up there which are going through what we have gone through and we found comfort in talking to them and helping them through there roller coaster ride of the transplant world,lord knows it the worst thing for any family to go through and we will continue to help them as long as they want.
Well Lauren has been staying at her nans and she love’s it there but will be good to get her home today so we can get on with being a family,we have so missed her and i know when she see’s us she wont let us go bless,it effects all the family when you go through health problems,anyway will write again soon the twins are also in the paper this week because there nursery was broken in to and they was so upset that they couldnt go to school when it happend rotten sod’s taking the kids clothes and stuff whats the point in that hey,take care all of you and keep in touch we are always here and if you get time please sign the twins guest book.
With love louise @ family xxx

atie is in hospital tomorrow she is having a balloon in her heart and a biopsy of her new hear to check that everything is working ok,she will be filmed during the operation by the bbc and also granada news are coming up on monday the day of the operation to do a update on katie,and we have been so busy trying to get everything ready and trying to make sure we have enough money to go up there because despite what people think we do not get paid any money for appearing on tv we do it for the sake of getting more donnors to come forward,even if we only had a penny in our pocket we would not ask for nothing its not about the money.

Im not looking forward to katies operation the hospital have said one of us can go in and watch it but i dont know if im strong enough to watch it,please dont think i dont love my daughter because i love her to much and she gets away with murder but its hard for a parent to watch there child go through that let me tell you.

Me and simon have just been putting a brave face on things but we both know deep down the next few days is going to be tough,things like this just bring us close together and we love each other more and more each day,the twin are the best thing that ever happend to us both and although the twins can be very naughty at times we would not change them for the world and yet again i have to go because grandads here simon’s father and the twins are giving him jip,simon has gone to watch city today so it just me the girls and grandad ,

And they are taking us for a huge ride right now little devils right i have to go i cannot take anymore operation kids is on the way sorry folks.

love louise xxx please sign the guest book for the girls

we would like to wish all the people all over the world who use our website a very happy new year to you all and hope this year is better for everyone,we had a few medical problems before xmas but things have settled down for us again now and me and simon are going out for a night out on friday for the first time in 4 years so its going to be great for us to spend some adult time together.Katie has got her date through for her small operation and biopsy at the same time we have to go to newcastle the day before so lauren will have to stay at her nans again till we get home which i dont know when that will be,never had to do this before so its all new to us.we are doing some filming again for a programme that comes out this year all about donors and signing the donor register which is great to get the message out there,and giving blood to is so important and you can find the details on this website for the donor register and the blood line number so come on guys do something great this year give hope to others like us,i know i have not wrote on here so much but i have been ill and the kids have been ill over these winter months but we will be getting our message our there this year and we feel that this year is going to be a great year for us all,just hope im not wrong,so goodnight godbless to you al for now and speak soon yeh. love louise x

All of us here at the Williams heart family would like to wish all you from all over the world a very merry Christmas and a happy new year and lets hope next year will be healthy and happy for us all.

May all your dreams come true and we hope that every child all over the world has a smile on there little face’s come xmas day,please please keep signing the donor register and giving hope to family’s like mine.Katie will be 12 months post transplant on the 21st December and on that day is also Zoe chambers birthday who so sadly passed away this year after her transplant so we will be thinking of the chambers family and little Zoe in heaven with the angels.

I have been in hospital for low heart rate and blood pressure and oxygen being to low but I’m glad to say even though i have a throat infection i do feel better since i stopped some of my tablets so things can only get better from now i think watch this space i will let you know how i feel soon,anyway bye for now and lets hope this xmas there is peace around the world and no sadness love to you all.

Best wishes

LOUISE AND WILLIAMS FAMILY X

Gosh where do i start we have been so busy and i will be honest have been spending a lot of time on face-book,but i have to remember why we set this site up to share thoughts and feelings and appeal for more donors to sign the donor register,well its nearly 12 months to the day that our Katie got the gift of life her new heart its on the 21st December and we have to remember all the children in hospital at Christmas time we have been there and its the time of year everyone has there family around them but not when your daughter is in I.C.U   no one apart from the parents are aloud to visit so its hard on family and siblings too.I would ask anyone if you have any spare toys or unwanted gifts please remember you can take them to your local hospital for the children who have to stay in this Christmas,little things count no matter how small to see a child’s face light up means the world to them and there parents,so dig deep people and do a good turn for your local children’s hospital.

We have all been ill with a virus picked up from nursery its not there fault Katie has very low immune system with taking anti rejection drugs after her heart transplant,i think we are all feeling better now and Katie is on form with her tantrums anyway,the twins are getting ever closer and cannot stand it when there apart which is a good thing because they will always look after each other,oh god Katie is in a right mood tonight she is just tiered but wont give up she is crying and kicking Simon so i might have to go and sort her out the little devil oh yes its full belt now i will have to write again tomorrow sorry everyone i have so much to say as-well sorry sorry sorry.

best wishes

Louise xxxx