The Williams Heart Family

On the 4th july our daughter Katie passed away after being in hospital for 2 months waiting for a second heart transplant,Katie had rejection and suffered many heart attacks,she was placed on the echmo machine to keep her alive then placed on a double berlin heart but her body couldn’t cope with this and doctors said they couldn’t transplant Katie because she was so sick,we had the watch her machine being switched off and she died in our arms 4 days before her 5th birthday,we are devastated and her twin sister is clearly missing her.

Being in hospital and watching Katie go through all the operations was the worst time in our lives and at points we could do nothing but to hold her hand,sometimes we was to frightened to touch her its the worst thing in the world,everyday was different one minute being told to go and rest and on the other hand being told we was off the ward to much,we was very much judged by staff who was telling us one thing and then telling us another,we never knew what to do for the best and i think staff on picu need to understand what the parents have to go through too,some days i was ok and the next very depressed and not knowing what to do,being told we should leave at 7.30 every night so Katie could rest and seeing other parents there with there children anytime they wanted,we have gone through a lot as a family and I’m going to write a letter to the head of the hospital telling them how we felt and what we was and wasn’t told to do,of course i thank the doctors and nurses for keeping our Katie alive for 2 months,but they put parents under so much pressure even trying to get involved in mine and Simon’s relationship which put more pressure on us and saying things about my weight which clearly has nothing to do with them.

I got sick quite a few time whilst Katie was on picu and i was told to go and see a doctor then when i did they said i focused to much on my own illness and not Katie’s so i couldn’t win either way really,i hope when i get in touch with picu they change a few things as regards to treating parents because its not nice,life is hard without Katie here and will never be the same again,we loved our daughter to bits and she was a strong willed little girl with passion for raising awareness for organ donation so we will carry on this fight for her in her memory,i hope staff on picu read this i have nothing to hide,its been a few months since Katie went to heaven and I’m ready to state my opinions to them now,I’m not saying they didn’t look after our daughter because they did but they have to understand they see things like this all the time and parents don’t and if it was there child they would feel the same way,this is the first time i have spoke out like this and wont be the last time because of the way we was treated as parents and people.

R.I.P KATIE MUMMY AND DADDY LOVE YOU WE ALWAYS HAVE AND ALWAYS WILL SEE YOU IN HEAVEN……………………XXXXXXXXXX

Well I’m very pleased to tell you all that Katie and Lauren have been picked to give Sophie the countess of Wessex some flowers on her royal visit to the Middleton arena,she will open the arena have a look around and then the girls will present her with some flowers and we are over the moon about it,the girls cant wait to meet her and they have new outfits to show off in the papers and on t.v,it is a real honour for the girls to be asked to do this,we have to go the day before to have a look around and see where they will be giving Sophie the flowers,there will also be a panto on and we cant wait for that we love panto’s and it is the season for it cant beat a panto at Christmas time,anyway x factor is on and i want either Olly or Stacey to win they are such good singers and i think Stacey is very dippy but a great person she wouldn’t harm a fly would she,you can also catch me on face-book please friend request me if you have not already, my name on there is Louise snape I’m hoping at some point next year me and Simon tie the knot and get married so i can have the same name as the girls and Simon, cant wait for that day we are so much in love its untrue.

anyway i wont bore you with all that love and romance ha ha will write again before Christmas and let you all know how it go’s with Sophie,you will all see it on the news anyway and in newspapers so don’t forget to buy one,please remember there are lots of children and adults waiting for transplants just now and its really important that we all sign the donor register and give blood to,come on people it only takes a minute to do and you can do this by going on the link on this website for the heart foundation thank-you for taking time out to read this best wishes

Louise x xx xx

If you feel you could share your story’s on health issue’s then please get in touch and we can post your story on here,please please don’t forget to sign your name on the donor register and remember giving blood is just as important you can find there links on this website,you will also find links to other websites you might find use-full,many thanks Louise XxX

I would like to welcome another administrator to the website whom will be telling her story soon about her dilated cardiomyopathy and how its effected her family and life,thank-you so much Donna i hope you can get your head around using the website its not that easy,i will send you a email if you have problems but when you log in it will say admin in the pink box you get to see what everyone else cant,you can uploads pictures i hope you enjoying working with me and thank-you so much love Louise xxx

Well what can i say my baby’s are growing up very fast and there not baby’s long enough,they start school Monday and I’m going to miss them like mad and because of the heart problems I’m going to be worried sick about them so much so i have already worked out how many times a day i will phone the school,i know i shouldn’t but i can’t help but worry.

The holidays have been OK Katie ended up in hospital for one week,they didn’t know what was wrong with her and did every test going even for swine flu but I’m glad to say it was just a tummy bug that we all had but it hit Katie more than us,i have been in hospital last week overnight to be honest i asked if i could go because i don’t like staying in unless i really have to they give me pain killers and sent me home,they said it was a blocked bowel which i can gladly say is no longer blocked phew ha ha.

With the twins starting school tomorrow they will be on Granada reports again and then in the Middleton guardian on Thursday and who ever grabs the story last time they was in every newspaper going and we didn’t even know about it.

Please I’m asking again for people to sign the donor register and give blood because its so so important in life we can count on each other.

We although having heart failure are on the donor list because if they cant use my heart they can use my skin or eyes anything they want they can have because i cant use it in the after life,all we need for the after life is our spirit,i hope everyone is well and thank-you to many people around the world for using my website as a source of information into the heart world if you have any questions please ask and i will do my best to answer you all my love Louise and family xxxxxxx